Frontotemporal dementia (FTD) is an umbrella term for dementias that affect the frontal or temporal lobes of the brain. This contrasts with Alzheimer’s disease, which typically affects other brain areas. The frontal lobe is responsible for judgment and contains the filter that makes you pause and carefully consider your words before speaking. Frontotemporal dementia does not affect memory; in many cases, people with FTD have a very sharp and precise memory for details and dates.

 

 

Typical Onset and Diagnosis

FTD typically presents between the ages of 45-65, much younger than Alzheimer’s disease. It is often misdiagnosed as a psychiatric disorder or overlooked for years before a correct diagnosis is made. FTD is usually diagnosed only after other conditions have been ruled out.

 

Symptoms of Frontotemporal Dementia

  • Lacking judgment and making poor decisions
  • No filter—saying anything that comes to mind without concern for offending others
  • Emotional disconnection and obliviousness to the feelings of others
  • Being withdrawn or becoming disinhibited (which can present verbally, sexually, etc.)
  • Losing interest in personal hygiene
  • Being easily distracted or perseverating on details with repetitive actions
  • Inappropriate social behaviors
  • Lack of insight into how their words or actions affect others
  • Blunted emotions with no empathy
  • Personality changes—may flip from being introverted to extroverted or vice versa
  • Language difficulties—trouble finding words, stuttering, perseverating on particular words (especially swear words)
  • Difficulty sustaining a conversation as language is impacted
  • Reading and writing can be affected

 

Impact on Social Interactions

Individuals with FTD often have a sharp memory for details but lack empathy for others. This can result in them remembering and repeatedly mentioning details that are bothersome or offensive to others. Their lack of social awareness and etiquette can lead to socially inappropriate behavior, regardless of its impact on others.

 

This behavior often results in social isolation. It is not uncommon for someone with FTD to gradually push away friends and family due to their behaviors and inability to function socially. Because FTD presents at a young age, it is not always recognized as dementia or even as a medical condition. It can be mistaken for a midlife crisis or a reaction to stress or life events.

 

Effects on Family and Friends

The effects on family members, friends, and others can be particularly difficult. When someone has Alzheimer’s disease, they may repeat the same question, but it is easier to reconcile that they truly don’t recall the information and don’t intend to cause distress. For example, they may ask, “Where is your husband?” each time they see you, reminding you of your recent divorce. You know they don’t intend to upset you; they honestly don’t remember the divorce.

 

In contrast, someone with FTD may say, “It’s no wonder your husband divorced you” each time they see you. While you know that FTD is a brain disorder, it is more challenging to remain objective.

 

Managing Frontotemporal Dementia

Since one of the hallmark symptoms of FTD is a lack of insight into one’s own behavior or its impact on others, it is not effective to try to change that behavior. Behavior modification depends on someone being motivated to change either for themselves or to please someone else. Someone with FTD is not motivated to change because they are unaware of their behavior and are not empathetic to the needs of others. Expecting to change their behavior is not effective. Learning to cope with the behaviors and remain emotionally objective is the only effective way to manage FTD.

 

Success Tips

  1. Behavior Modification is Not Effective: Attempting to change the person or their behavior will only frustrate everyone involved. Someone with FTD may promise to change, but their brain’s filter is no longer effective, so they will continue to say or do whatever crosses their mind, despite earlier promises. While they can remember the content of conversations, they cannot relate to the emotional pleas of others and are not capable of modifying their reactions. Just because they have a strong memory does not mean their brain is functioning normally.
  2. Do Not Take Anything Personally: Do your best not to react, even if you are experiencing strong emotions. Often, the person with FTD is looking for a reaction and cannot distinguish between a strong positive or negative reaction; they just recognize that they received a strong reaction. If they succeed in getting a strong reaction, they may continue the same behavior seeking a continued response. Aim not to react and don’t take it personally.
  3. Professional Caregiving Support: Caring for someone with FTD can be emotionally draining. Enlisting professional caregiving support is often necessary to provide respite relief to primary caregivers who become exhausted. Warm Embrace can provide the professional caregivers needed to support the person with FTD.
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